Service Name | Description | Location | Program | Agency |
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Alzheimer's Information & Referral Services (Colorado Springs) - Alzheimer's Association Colorado Chapters | Provides assistance for people with Alzheimer's disease and their caregivers and families, including classes, education, support groups, and resources. | El Paso County | Colorado Springs - Alzheimer's Association - Colorado Chapters | Alzheimer's Association Colorado Chapters |
Alzheimer's Resources - Alzheimer's Association Colorado Chapters | Provides support, education, and resources to persons with Alzheimer's or Dementia, their caregivers, and family members, including:
- A lending library covering a wide variety of Alzheimer's topics
- Memories in the Making (MIM), an art program for individuals with Alzheimer’s disease or related dementia that brings comfort and joy through the process of creating watercolors
- Educational series for those who are new to Alzheimer's disease, or in the middle to late stages of the disease
- Family options counseling
- Community referrals to physicians, diagnostic services, day care centers, residential care, hospices, elder law attorneys, and area agencies on aging
- A quarterly newsletter
- Support groups for persons with Dementia/Alzheimer's, their families, and caregivers | Weld County | Northeast Colorado/Greeley / Alzheimer's Association Colorado Chapters | Alzheimer's Association Colorado Chapters |
Alzheimer's Resources (Denver) - Alzheimer's Association Colorado Chapters | Provides assistance for people with Alzheimer's disease and their caregivers and families, including classes, education, support groups, and resources. | Denver County | Denver - Alzheimer's Association Colorado Chapters | Alzheimer's Association Colorado Chapters |
Alzheimer's Resources (Fort Collins) - Alzheimer's Association Colorado Chapters | Provides education, support, and connections to resources for persons with Alzheimer's Disease and other dementias, as well as their families and caregivers. | Larimer County | Fort Collins - Alzheimer's Association Colorado Chapters | Alzheimer's Association Colorado Chapters |
Alzheimer's Resources (Louisville) - Alzheimer's Association Colorado Chapters | Provides assistance for people with Alzheimer's disease and their caregivers and families, including classes, education, support groups, and resources. | Boulder County | Louisville - Alzheimer's Association Colorado Chapters | Alzheimer's Association Colorado Chapters |
Alzheimer's Resources (Pueblo/Southern Colorado) - Alzheimer's Association Colorado Chapters | Offers a variety of services to persons with Alzheimer's or Dementia and their caregivers or family members, including:
- The Safe Return Program; a nationwide system to help identify, locate, and return inidviduals who are memory impaired due to Alzheimer's disease or a related disorder to safety
- Support group meetings for persons with Alzheimer's and their family or caregivers
- A helpline provides telephone information, support, and referrals in Southern Colorado
- Family Options Counseling
- Community education workshops | Pueblo County | Pueblo/Southern Colorado - Alzheimer's Association Colorado Chapters | Alzheimer's Association Colorado Chapters |
Alzheimer's Resources - Western Slope Region, Alzheimer's Assocaiton Colorado Chapters | Provides assistance for people with Alzheimer's disease and their caregivers and families, including classes, education, support groups, and resources. | Mesa County | 2232 N. 7th Street | Alzheimer's Association Colorado Chapters |
American Sexual Health Association | - STD research; public policy; educational pamphlets.
- Herpes Resource Center, which provides Herpes information via the Helper newsletter, books, audio and video tapes, and pamphlets.
- Herpes and HPV support groups; HPV support program, which provides information via pamphlets and the HPV News journal; information hotlines
- CDC National STD and AIDS hotlines. | Out of State | Organizational/Community/International Services - American Social Health Association | American Sexual Health Association |
Ataxia Information and Support - National Ataxia Foundation | Provides information, referrals to neurologists, a newsletter, support groups, an annual conference, and a pen pal program for ataxia families to connect. | Out of State | National Ataxia Foundation | National Ataxia Foundation |
Autism Information and Support - Autism Society of Colorado | Offers a variety of events, activities and information services which include:
- Autism Navigation Center for information, referrals, advocacy and support, support and social groups from birth to adulthood
- Sensory-friendly events with our community partners
- Autism 101 and other presentation to help understanding of the autism community for community groups, school districts, organizations and employers
- Annual Autism Walk
| Denver County | Autism Society of Colorado | Autism Society of Colorado |
Autism Information - Autism Speaks | Provides a website with information on the following:
- Family Services
- Advocacy
- Research
- Events
- Walk information
- Merchandise
- Partners
- Resource Guide
- Tool Kits
- Autism Apps
| Out of State | Autism Speaks | Autism Speaks |
Autism Resources - Autism Speaks | Coordinators respond to family inquires/requests by phone or email. Provide 137 resources listed for the state of Colorado. Also accepts additional resources and information about a service or service provider that would be helpful to individuals with autism and their families. | Out of State | Autism Speaks | Autism Speaks |
Brain Injury Support Groups - Brain Injury Alliance of Colorado | Connects individuals with a brain injury and their families with the following:
- Adult and youth recreation programs
- Support groups
- Life skills workshops
- Peer advocacy
- Information and referrals | Denver County | Brain Injury Alliance of Colorado | Brain Injury Alliance of Colorado |
Brain Tumor - American Brain Tumor Association | Offers support and information for people living with a brain tumor, with over twenty publications addressing the different types of tumors and current research. | Out of State | American Brain Tumor Association | American Brain Tumor Association |
Cancer Information and Referral Services (Colorado Springs) - American Cancer Society | Provides personalized information, support and resource referrals to cancer patients, caregivers, and their families. | El Paso County | Colorado Springs - American Cancer Society | American Cancer Society |
Cancer Information - National Cancer Institute | Provides confidential answers to specific questions about cancer and assistance to smokers who want to quit. | Out of State | National Cancer Institute | National Cancer Institute |
Cerebral Palsy Information & Referral Services - Cerebral Palsy Association of Colorado Springs | Provides education around cerebral palsy to schools, families, and individuals. Also provides resource and referral information for those with cerebral palsy and their families. | El Paso County | Cerebral Palsy Association of Colorado Springs | Cerebral Palsy Association of Colorado Springs |
Childhood Cancer Information & Referral Services - Candlelighters of Southern Colorado | Provides support for families and individuals touched by childhood cancer and blood disorders through information and referral services, as well as monthly family uproot events.
| El Paso County | Candlelighters of Southern Colorado | Candlelighters of Southern Colorado |
Chronic Disease Self-Management Education - South Central Colorado Seniors | Provides classes for seniors age 60+ around chronic disease self-management. | Alamosa County | South Central Colorado Seniors | South Central Colorado Seniors |
Cleft Lip and Cleft Palate Information - Pueblo Department of Public Health and Environment | Provides education and information on cleft lip and/or cleft palate, including feeding, obtaining needed equipment, accessing insurance, and medical care. | Pueblo County | Pueblo Department of Public Health and Environment | Pueblo Department of Public Health and Environment |
Cranial Nerve Information and Assistance - Acoustic Neuroma Association | Provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves. | Out of State | Acoustic Neuroma Association | Acoustic Neuroma Association |
Diabetes Management Program - Platte Valley Medical Center | "Let's Talk Diabetes" offers classes to help individuals to better manage Diabetes or Prediabetes. Topic include:
- Overview of Diabetes and Prediabetes
- Blood Sugar Monitoring
- Managing Diabetes with your diet
- Meal planning techniques to fit your lifestyle
- Medication management
- Prevention of chronic diseases
- Exercise and activity
| Weld County | Platte Valley Medical Center | Platte Valley Medical Center |
Diabetes Services and Information (Denver Chapter) - American Diabetes Association | Resource and referral center to meet the needs of persons with diabetes and their families. | Denver County | Denver Chapter - American Diabetes Association | American Diabetes Association |
Disability/Medical Rehabilitation Information & Referral Services - The National Rehabilitation Information Center | Provide information and resources for disabilities and medical rehabilitation services. | Out of State | The National Rehabilitation Information Center | The National Rehabilitation Information Center |
Disabled Adult Information & Referral Services - Independence Center | Provides information and referrals around local resources and community services for those with disabilities. | El Paso County | Independence Center | Independence Center |
Disabled Children & Family Services - Blue Peaks Developmental Services | Provides service coordination for children who have or are at risk for developmental disabilities through several programs. Early Intervention Services can include therapies, assistive technology devices, family training and counseling, health services and social work services. The Children's Extensive Support program serves children with significant medical and/or behavioral needs and provides intensive supports that enable a parent to keep their child at home. The Family Support Services program assists families with costs beyond those normally experienced by other families without children with disabilities, and helps families avoid or delay costly out of home placements. | Alamosa County | Blue Peaks Developmental Services | Blue Peaks Developmental Services |
Disabled Youth Information & Referral Services - Peak Parent Center | Provides information and referral services for disabled youth and their families. | El Paso County | Peak Parent Center | Peak Parent Center |
Educational Events - Crohn's & Colitis Foundation Rocky Mountain Chapter | Provides educational events on topics related to Crohn's Disease or ulcerative colitis. | Denver County | Crohn's & Colitis Foundation Rocky Mountain Chapter | Crohn's & Colitis Foundation Rocky Mountain Chapter |
Family Support and Information - Lighthouse Guild Parent Support Network | Provides parents with information and support through a national toll-free number, and administers an international information and support network that links parents of children with similar eye conditions. Educational workshops and newsletters are also available. | Out of State | Lighthouse Guild Parent Support Network | Lighthouse Guild Parent Support Network |
Family Support - Batten Disease Support and Research Association | Support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as Batten Disease. Provides information, education, medical referrals and assistance along with support. | Out of State | Health Care - Batten Disease Support and Research Association | Batten Disease Support and Research Association (BDSRA) |
Fragile X Awareness and Support Groups - National Fragile X Foundation | Distributes information about Fragile X Syndrome, provides information and referrals, educational materials, and a quarterly newsletter, and offers access to support groups for families. | Out of State | National Fragile X Foundation | National Fragile X Foundation |
General/Support Group Information - National Brain Tumor Society | Provides individuals with general information on brain tumors and support groups in their area. Brain tumor support groups are filled with people who have been where patients are now – they have been diagnosed, gone through treatment, and are living as survivors.
| Out of State | National Brain Tumor Society | National Brain Tumor Society |
Headache Information - National Headache Foundation | Disseminates free information on headache causes and treatments, funds research, sponsors public education seminars nationwide, and offers a clearinghouse of headache-related information. A list of National Headache Foundation physician members is also available upon request. | Out of State | National Headache Foundation | National Headache Foundation |
Health Information - National Heart, Lung, and Blood Institute Health Information Center | Provides information on heart and lung disease, blood resources, sleep disorders, cardiovascular disease, risk prevention and treatments, and related topics. | Out of State | National Heart, Lung, and Blood Institute Health Information Center | National Heart, Lung, and Blood Institute Health Information Center |
Health Information - National Institute on Deafness and Other Communication Disorders | Provides health information and an information line on the following topics:
- Ear infections in children
- Specific language impairment
- Noise-induced hearing loss
- Balance disorders
- Ménière’s disease
- Speech and language developmental milestones
- Taste disorders | Out of State | National Institute on Deafness and Other Communication Disorders | National Institute on Deafness and Other Communication Disorders |
HIV - AIDS Support (E 14th Pl) - Tri-County Health Department | Provides free and confidential services for individuals living with HIV/AIDS, including the following services:
- blood draws for confirmatory testing (CD4 and viral load counts)
- referrals to community resources and support services
- assistance with financial assistance applications
- assistance understanding lab results and treatment plans | Arapahoe County | E 14 Pl - Tri-County Health Department | Tri-County Health Department |
HPV Support Program - American Social Health Association | -Accurate and up-to-date information about HPV and cervical cancer prevention and related issues such as screening, self-esteem, partners, and transmission.
-Source for referrals such as local HPV support groups
-Voice to increase the awareness of HPV and cervical cancer prevention through the mass media
-Sponsor for medical research on HPV
| Out of State | Individual and Family Life - American Social Health Association | American Sexual Health Association |
Huntington's Support - Huntington's Disease Society of America | Provides services for individuals affected by Huntington's Disease including:
- Placement assistance
- Financial planning
- Resources
- Monthly support groups
- Counseling for individuals and their families
- In-service trainings for nursing home staff
- Community education
- Genetic testing program
- Information and referral | Jefferson County | Huntington's Disease Society of America Rocky Mountain | Huntington's Disease Society of America Rocky Mountain |
Incontinence Information & Referral Services - The Simon Foundation for Continence | Provides education as well as resource information for those with loss of bladder and bowel control. | Out of State | The Simon Foundation for Continence | The Simon Foundation for Continence |
Infant and Maternal Health Information (Denver) - March of Dimes | Provides community services, advocacy, medical services, and health education on birth defects and infant mortality, including online resources, lectures, and brochures. | Denver County | Denver - March of Dimes | March of Dimes |
Information and Support - Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) | Provides education and support for children and adults with Attention-Deficit/Hyperactivity Disorder (ADHD), including:
- National helpline with ADHD specialists
- Online forum
- Denver area support group (See Helpful Tips)
- Electronic and print information about ADHD
- Online Resource Directory of local providers in Colorado offering counseling, coaching, therapy, educational support, and other services
- Training for Professionals
- Community Support | Out of State | Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) | Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) |
Information and Support for Lymphoma Patients - Lymphoma Foundation of America | Provides information to lymphoma patients and families, including updates on research, new treatments, and patient rights, counseling from registered nurses over the phone, and referrals to other resources. | Out of State | Lymphoma Foundation of America | Lymphoma Foundation of America |
Information - Liver Health Connection | Provides information and support to people with Hepatitis C and their families. Programs include:
- telephone consultation
- information and referrals
- testing
- newsletters
- patient information kits
- educational seminars
- training sessions for health care professionals and interested groups.
Hepatitis-C Testing is free and confidential. | Denver County | Liver Health Connection | Liver Health Connection |
Information & Support for Families Raising Disabled Children (Granby Cir) - Special Kids Special Families | Provides a forum where families raising children with special needs can learn about resources in the community as well as gain support and interact with other parents. | El Paso County | Granby Cir - Special Kids Special Families | Special Kids Special Families |
Kidney Disease Education and Services - National Kidney Foundation | The National Kidney Foundation's direct patient programs include:
- KEEP Healthy kidney disease screenings
- Your Kidneys and You educational presentations
- NKF Cares and NKF Peers patient support hotlines
- The Big Ask/The Big Give organ donation education initiative
NKF also improves patient health and well-being through the development of widely-adopted clinical practice guidelines, professional education opportunities for those who care for kidney patients, research grants that support new treatment approaches, and advocacy efforts at the state and national level that focus on protecting patients and increasing investment in kidney disease prevention and research. | Denver County | National Kidney Foundation | National Kidney Foundation |
Learning Disabilities Workshops - LEAD Foundation | Provides workshops for high school students with learning disabilities and/or ADHD and their parents. These workshops are offered at little to no cost. | El Paso County | LEAD Foundation | LEAD Foundation |
Lowe Syndrome Information - Lowe Syndrome Association | Promotes communication among families affected by Lowe Syndrome, provides information, and encourages and supports research. Activities include:
- Publications and Newsletters
- Parent directory
- Conferences
- Medical research grants | Out of State | Lowe Syndrome Association | Lowe Syndrome Association |
Lupus Information and Assistance - Lupus Colorado | Provide services for individuals with Lupus, their friends and family, including:
- physician referrals
- financial assistance (medical fee assistance, food, etc.)
- individual advocacy
- discount prescriptions
- information and referral services
- short-term counseling
- support groups | Arapahoe County | Lupus Colorado | Lupus Colorado |
Multiple Sclerosis Information & Referral Services (Colorado Springs) - Multiple Sclerosis Alliance of Southern Colorado | Provides information and referral services for individuals newly diagnosed with Multiple Sclerosis and their families, or those facing changes in their disease.
| El Paso County | Colorado Springs - Multiple Sclerosis Alliance of Southern Colorado | Multiple Sclerosis Alliance of Southern Colorado |
Multiple Sclerosis Support Services - National Multiple Sclerosis Society Colorado-Wyoming Chapter | Provides programs, services education and support to help individuals living with Multiple Sclerosis improve their quality of life. Services include:
- Counseling
- Care management
- Peer support
- Support groups
- Health and wellness programs
- Social and recreational programs
- Limited financial assistance for MS related needs such as utility bills
- Information and referral
- Volunteer support
- Practical and financial assistance
- Educational Resources | Denver County | National Multiple Sclerosis Society Colorado-Wyoming Chapter | National Multiple Sclerosis Society Colorado-Wyoming Chapter |
Myalgic Encephalmyelitis/Chronic Fatigue Syndrome Information & Referral Services - Wisconsin Myalgic Encephalmyelitis / Chronic Fatigue Syndrome Association | Provides information and support to patients diagnosed with Myalgic Encephalmyelitis / Chronic Fatigue Syndrome and their families. The Association is dedicated to assisting patients & their families with ME/CFS & other neurological auto-immune disorders as well as Lyme disease. | Out of State | Wisconsin Myalgic Encephalmyelitis / Chronic Fatigue Syndrome Association | Wisconsin Myalgic Encephalmyelitis / Chronic Fatigue Syndrome Association |
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Information Services - Solve ME/CFS Initiative | Provides education and information around myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) – also known as chronic fatigue and immune dysfunction syndrome (CFIDS) or systemic exertion intolerance disease (SEID). | Out of State | Solve ME/CFS Initiative | Solve ME/CFS Initiative |
Online Cancer Support (Colorado Springs) - American Cancer Society | Provides an on-line community for cancer survivors and caregivers called the Cancer Survivor Network. Provides connections with others affected by cancer, discussion boards, chat rooms, personal web pages, private and secure messaging, resource library, e-newsletter, and more | El Paso County | Colorado Springs - American Cancer Society | American Cancer Society |
Osteoporosis Information - National Osteoporosis Foundation | Provides a variety of educational programs and resources to patients, their families, and health professionals regarding osteoporosis. | Out of State | National Osteoporosis Foundation | National Osteoporosis Foundation |
Patient Services - Arthritis Foundation | Provides information, support groups, community events, and a national helpline staffed by social workers to address requests for physician referrals, medical advice, etc. for individuals with arthritis. The Arthritis Foundation local market covers Colorado and Wyoming. | Denver County | Arthritis Foundation | Arthritis Foundation |
Patient Services - Leukemia and Lymphoma Society | Conducts research, provides patient financial assistance for drug co-pays and insurance premiums, public and professional education, family support groups, information resource materials, and assistance with insurance claims. | Denver County | Leukemia and Lymphoma Society | Leukemia and Lymphoma Society |
Patient Services (Wagner Street) - Rocky Mountain Multiple Sclerosis (MS) Center | Provides support and services for individuals with Multiple Sclerosis and their families.
- Educational seminars
- Counseling services (patients, families, and caregivers)
- Legal clinic (disability filing assistance)
- Information | Adams County | Wagner Street - Rocky Mountain Multiple Sclerosis Center | Rocky Mountain Multiple Sclerosis Center |
Patient Support Services - American Cancer Society | Provides a website and hotline available 24 hours/7 days a week to assist patients through every step of a cancer diagnosis. Information and resources are available on a variety of topics, including:
- Understanding a cancer diagnosis
- Finding and paying for treatment
- Treatments and side effects
- Information and referral for support cancer patients
- Children and cancer
- Caregiver support
- Transportation to cancer appointments (local and long distance)
- Lodging program for cancer patients
- Patient Navigation
- Cancer Survivors online support group (Cancer Survivors Network) | Denver County | Breast Cancer Support - American Cancer Society | American Cancer Society |
Prostate Cancer Awareness - Prostate Conditions Education Council | Serves as a resource for information on prostate health through patient education, awareness programs, and connections to screening sites. | Arapahoe County | Prostate Conditions Education Council | Prostate Conditions Education Council |
Psoriasis Information - National Psoriasis Foundation | Offers specially-trained patient navigators that provide free one-on-one guidance to individuals impacted by psoriasis and psoriatic arthritis; patient and caregiver educational resources and programs; and connections with others living with psoriatic disease. | Out of State | National Psoriasis Foundation | National Psoriasis Foundation |
Rare Disorders Clearinghouse - National Organization for Rare Disorders (NORD) | Offers a clearinghouse of information on rare diseases to individuals, medical professionals, libraries, educators, and corporations. Also provides the following:
- Advocacy
- Referrals to patients and families for assistance and support
- A confidential patient registry
- Networking program for members
- Information about starting support groups
- A biannual newsletter for members | Out of State | National Organization for Rare Disorders (NORD) | National Organization for Rare Disorders (NORD) |
Resources for Individuals with Cystic Fibrosis - Cystic Fibrosis Foundation | Conducts research and fundraising activities, provides educational programs, and information and referrals to people with cystic fibrosis and their families. | Denver County | Cystic Fibrosis Foundation | Cystic Fibrosis Foundation |
Retinal Disease Information & Referral Services - The Foundation Fighting Blindness | Offers information and referral services for those living with retinal diseases. | Out of State | The Foundation Fighting Blindness | The Foundation Fighting Blindness |
Rett Syndrome Clinic (Colorado) - Rettsyndrome.org | The Children's Hospital Colorado understands the diagnostic criteria of Rett syndrome and related disorders, and is dedicated to identifying the multiple needs of those diagnosed with the disorder. Contact the clinic directly to schedule an appointment and discuss payment options and insurance coverage. | Douglas County | Rett Syndrome Clinic (Colorado) - Rettsyndrome.org | Rettsyndrome.org |
Scleroderma Information (Denver) - Scleroderma Foundation | The Scleroderma Foundation offers the following tools and resources in support of people living with scleroderma and their families:
Has a nationwide network of 20 active chapters and more than 160 support groups
Staff a toll-free helpline providing information and referrals to callers
Publish a quarterly magazine called "Scleroderma Voice"
Offer a variety of brochures, booklets and newsletters, along with our informative website | Denver County | Denver - Scleroderma Foundation | Scleroderma Foundation |
Services for Individuals with Disabilities - Connections for Independent Living | Offers a variety of services to individuals with disabilities including:
- Advocacy in order to obtain access to benefits and services
- Information and referral to other resources
- Peer support
- Independent living skills training (e.g., personal care, coping, financial management, social skills, household management)
- Finding and retaining employment (e.g., job search techniques, resume writing, interviewing skills, computer skills)
- Identifying resources and support systems transitioning (e.g., nursing homes to independent living, or the community-at-large and youth transition needs)
- Support groups (i.e., Traumatic Brain Injury, Women, Low-Vision, Coloring, Veterans, Bingo) | Weld County | Connections for Independent Living | Connections for Independent Living |
Smoking and Lung Disease Classes - American Lung Association in Colorado | Provides educational classes and programs on quitting smoking, managing asthma, and coping with Chronic Obstructive Pulmonary Disease. | Arapahoe County | American Lung Association in Colorado | American Lung Association in Colorado |
Stroke Education - Rocky Mountain Stroke Center | Information and resources are provided on stroke prevention, treatment, rehabilitation, care giving issues, and stroke support groups. | Arapahoe County | Rocky Mountain Stroke Center | Rocky Mountain Stroke Center |
Sturge-Weber Syndrome Information & Referral Services - Sturge-Weber Foundation | Provides information and support to individuals and families affected by Sturge-Weber Syndrome, educates the public about Sturge-Weber Syndrome, and facilitates research. Also provides help to families with Klippel-Trenaunay and Port Wine Stains. | Out of State | Sturge-Weber Foundation | Sturge-Weber Foundation |
Sudden Death Counseling and Support - Angel Eyes | Offers awareness and educational services throughout Colorado, focusing on Sudden Infant Death Syndrome (SIDS), Sudden Unexpected Infant Death Syndrome (SUID), and Sudden Unexplained Death in Childhood (SUDC) and risk reduction. Assists all who have been impacted by the sudden, unexpected loss of an infant or toddler, including miscarriage and stillbirth with bereavement support groups, counseling, and child play therapy for siblings. | Denver County | Angel Eyes | Angel Eyes |
Sudden Infant Death Syndrome - Pueblo Department of Public Health and Environment | Provides follow-up, information/education, referrals to families, extended families, and others when a SIDS death occurs. Coordinates services with the Colorado SIDS Center and provides educational presentations on SIDS upon request. | Pueblo County | Pueblo Department of Public Health and Environment | Pueblo Department of Public Health and Environment |
Support Services for Individuals with Down Syndrome - Rocky Mountain Down Syndrome Association | Serves families of children and adults with Down syndrome, and interested professionals in the Mountain States region by providing the following services:
- Peer and community support
- Support groups
- Information and referral services
- Social activities and continuing education programs for adults with Down syndrome | Denver County | Rocky Mountain Down Syndrome Association | Rocky Mountain Down Syndrome Association |
Support Services - Muscular Dystrophy Association | Provides free, comprehensive services such as diagnostic testing, genetic counseling, follow-up clinics, orthopedic aids, and physical and occupational therapy to individuals who have neuromuscular diseases and their families. | Denver County | Muscular Dystrophy Association | Muscular Dystrophy Association |
Support Services - Sickle Cell Disease Association of America (Denver) | Provides educational resources, sickle cell trait counseling, health care referrals, and support for blood drives for people with sickle cell anemia. | Denver County | Sickle Cell Disease Association of America (Denver) | Colorado Sickle Cell Association, Inc |
Thalassemia Information - Cooley's Anemia Foundation, Inc. | Provides general information on various forms of thalassemia, a genetic blood disorder, mostly commonly Cooley's anemia/thalassemia major. Support includes:
- Publications
- Information on Clinical Trials
- List of Treatment Centers
- Social Media Support Pages
- Annual Conference for Patients & Families
- Patient Services | Out of State | Cooley's Anemia Foundation, Inc. | Cooley's Anemia Foundation |
The Infantile Scoliosis Outreach Program (ISOP) - Ability Connection Colorado | Connects families of children with progressive infantile scoliosis to resources and information needed to make the best and least invasive decision.
| Denver County | Ability Connection Colorado | Ability Connection Colorado |
Tuberous Sclerosis Information & Support - Tuberous Sclerosis Alliance | Provides support and information for those who have been diagnosed with Tuberous Sclerosis Complex (TSC). | Out of State | Tuberous Sclerosis Alliance | Tuberous Sclerosis Alliance |